PARENTS of a two-year-old born with a rare disease had to make the agonising decision to get their daughter’s legs amputated – so that she would live a pain-free life.
Freya Gibbs, two, was born without shin bones in her legs- meaning she could only move by crawling on her knees and faced a life of unending painful surgeries to help her walk.
Little Freya was born without shin bones – leading her parents to make the agonising decision to amputate her legs[/caption]
Freya’s mum, Danielle, 26, says she beams with happiness seeing her daughter walk with her prosthetic legs[/caption]
But her parents, Danielle and Michael from Llandysul, Wales, asked doctors to amputate her legs – rather than let her face a lifetime of surgery.
The tot was born with a condition that only affects one in three million children.
Little Freya would run around on her knees but she would fall over on her legs – leading her parents to make the horrendous decision.
The tot now grins “from ear to ear” when she puts on her prosthetic legs in the morning, knowing she can run and play like her 8-year-old sister, Olivia.
Danielle, 26, said: “We couldn’t bear to see our happy, giggling baby in pain.
“Now we see her running around, playing with her big sister like she’s always wanted to, we know we made the right call.”
Just sixth months after Freya’s legs were taken away, the little fighter is walking without pain for the first time in her life.
The two-year-old was recently given her first set of prosthetic limbs – and can now walk hand-in-hand with her big sister, Olivia.
Danielle now beams with pride watching her youngest daughter run around like other children her age.
She said: “Words cannot describe how proud we are of Freya.
“The first time Freya was able to walk along outside and Mummy and Daddy hold a hand each it felt like a miracle and we were bursting with pride.
“The little things that most people take for granted are so important to us.
“Having Freya’s legs amputated was a horrendous decision to have to make.
“She was trying to run around the house on her knees and her legs were just getting in her way. They would get caught on door frames and she would fall over them.
“It broke my heart. Our daughter was determined not to let anything get in the way of her doing what she wanted and her body was letting her down.
“They were holding her back so we made the heartbreaking decision to have them removed.
“She grins from ear to ear when we bring them to her to put them on in the morning. She already knows that once she’s put her legs on, she can go out to play.
“Taking away Freya’s legs has actually given her freedom she never would have known otherwise. We’d make the same decision again in a heartbeat.”
Taking away Freya’s legs has actually given her freedom she never would have known otherwise. We’d make the same decision again in a heartbeat
Danielle, Freya's mum
Danielle, a supermarket manager, only found out her daughter’s legs hadn’t formed properly after Freya was born in September 2017.
Freya was eventually diagnosed with bilateral tibial hemimelia, meaning her shin bones had not formed.
She either faced years of gruelling surgery to rebuild her tibia, or amputation.
Her mum added: “The amputation wasn’t carried out until she was 18 months old.
“As it drew nearer and nearer, it made me feel sick thinking about it.
“But as Freya was getting older and progressing, I could see all the things she couldn’t do because of her legs and how they were holding her back.
“It was a mixture of terror and relief that she would finally be free of them.”
The family are now fundraising for new prosthetics that Freya will need in the future when her body begins to grow.
Danielle said: “As Freya gets older, the prosthetics she needs get more complicated and expensive.
MOST READ IN NEWS
“She is such an active little girl. We would love to be able to get her a pair of running blades so she can play outside and join in with her school friends.”
You can donate to Freya’s cause here.
Her parents are happy to see Freya, two, and Olivia, eight, play together[/caption]
We pay for your stories! Do you have a story for The Sun Online news team? Email us at [email protected] or call 0207 782 4368. You can WhatsApp us on 07810 791 502. We pay for videos too. Click here to upload yours.